What We're Doing
Welcome to our showcase page! Here, we invite you to see what Not Defined By FND is all about and the goals we are actively pursuing. Let us give you a glimpse into our world and the exciting things we have in store.
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Looking for events? Click here.
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Awareness & Advocation Initiatives
Not Defined By FND is dedicated to raising awareness and advocating for the Functional Neurological Disorder (FND) community through a variety of impactful initiatives. These efforts are designed to support individuals affected by FND, educate the public, and drive meaningful change.
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Local and Virtual Fundraising & Awareness Events: We host local and virtual events to bring people together, raise funds for our organization’s goals, and spread awareness about FND. These events foster a sense of community while educating participants on the realities of living with FND. Want to see what's happening? Click here.
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Educational Videos & Resources: Our educational content includes videos and other resources that explain FND, its symptoms, and available treatments. These materials help both those diagnosed and the general public understand the condition better. Check out our YouTube Channel for our collection of videos.
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Warrior Stories: We highlight personal stories from FND Warriors—individuals living with FND who share their experiences. These stories inspire others and promote understanding, giving a voice to the community. Click here to read their motivational journeys.
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FND Awareness Products: We offer a variety of products designed to raise awareness about FND and support our mission. By purchasing these products, you not only help us fund vital initiatives but also become an active advocate for the FND community. Click here to shop.
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Petitions for Policy Change: We actively advocate for change through petitions aimed at improving healthcare policies, increasing funding for FND research, and enhancing public awareness. Supporters are encouraged to sign and share these petitions to amplify our collective voice. Click here for current petitions.​
Together, these initiatives empower the FND community, increase public knowledge, and advocate for better policies, resources, and care.
Research Initiatives
Not Defined By FND is committed to advancing research on Functional Neurological Disorder (FND) to improve understanding, diagnosis, and treatment options. Our current research initiatives include:
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Ongoing Surveys: We are conducting surveys targeting different groups (patients, caregivers, healthcare providers) to gather crucial data about the experiences and needs of the FND community. This information will help us advocate for better resources and care. Visit our Ongoing Surveys page to learn more and participate.
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FND Detective Series: Our team of volunteers is developing a series of in-depth research articles exploring various aspects of FND. These articles aim to educate the public and provide valuable insights into the disorder. Click here to learn more.
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Future Goals - Expanding Our Impact: To further our mission, as we expand, we hope to form partnerships with leading universities, medical institutions, and patient advocacy groups to conduct groundbreaking research on FND. These collaborations will help us uncover the underlying causes of FND, develop more effective treatments, and improve the lives of those affected.
Through these initiatives, we aim to contribute to the growing body of knowledge about FND and ultimately improve the lives of those affected by this condition.
Resource Initiatives
Not Defined By FND is dedicated to providing valuable resources and support to individuals with Functional Neurological Disorder (FND).
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Virtual Support Groups: Connect with others in the FND community through online support groups, offering a safe space to share experiences and find encouragement.
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FND Medical Alert Items: Ensure your safety with FND-specific medical alert products that provide crucial information to first responders in case of an emergency.
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Expanding Our Reach - Future Resource Initiatives: We're not stopping there! We are committed to expanding our support for the FND community. We're actively developing new initiatives and gathering resources to make them happen. Stay tuned for updates on these exciting initiatives as we continue to grow and expand our support network!