About This Website
Disclaimer: This website does not provide medical advice. The information contained on this website is for informational purposes only. No material on this site is intended to be a substitute for professional medical advice, diagnosis or treatment. Always seek the advice of a health care professional with any questions you may have regarding a medical condition or treatment.
This website is intended to provide:
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information about FND
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research regarding FND
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resources for FND
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a safe place to engage with one another (in forums and discussions)
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inspiration and hope for all FND warriors
We strive to maintain the accuracy of information provided on this website. If you notice something that is not correct, please contact us so that we can correct it. If you have something you would like to add, please let us know!
Our Story
Imagine seeking medical help for an illness, only to be dismissed and disbelieved. This is the harsh reality for many with Functional Neurological Disorder (FND). The journey to diagnosis is often a long and arduous one, filled with multiple doctors, countless tests, and frustratingly normal results. Patients are often left feeling isolated and unheard, their struggles minimized or attributed to psychological factors.
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This was the experience of our founder. Witnessing firsthand the lack of awareness, understanding, and resources for FND, and connecting with countless others facing similar challenges, sparked a determination to create change. Not Defined By FND was born from the urgent need to advocate for the FND community.
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We believe that no one should suffer in silence or be defined by their disorder. We are committed to raising awareness, supporting research, improving access to treatments, and empowering those with FND to live full and meaningful lives.
Click here to watch the "Introduction to Not Defined By FND" video to learn more about our founder, the inspiration behind our organizations, and our mission and goals.
Our Mission, Vision & Goals
Our Mission Statement:
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Not Defined By FND aims to end stigma and bring awareness, advocate for research and treatments, and create conversations to bring needed changes and hope for all FND warriors.
Our Vision
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We envision a world where Functional Neurological Disorder is widely understood, effectively treated, and no longer carries stigma. Individuals with FND will have access to timely diagnosis, comprehensive care, and the support they need to live fulfilling lives.
Founded in 2024, Not Defined By FND is a transformative nonprofit organization that aims to create change, end stigma, and empower those living with Functional Neurological Disorder (FND). Our mission is to bring awareness, advocate for research and treatments, and initiate conversations that spark needed changes in communities around the world. As fervent supporters of FND warriors, we strive to provide hope and support through our organization. We believe that no one should be defined by their illness, and through education and collaboration, we can make a lasting impact on the lives of those affected by FND.
Our Goals
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Driven by the urgent need for change, Not Defined By FND is committed to:
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Increasing Awareness and Understanding: We are dedicated to educating both the community and the medical field about FND, breaking down misconceptions, and fostering empathy and support.
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Expanding Treatment and Resource Options: Through advocacy and collaboration, we strive to increase the availability of specialized care, therapies, and resources for individuals with FND.
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Reducing Stigma: We aim to dismantle the stigma surrounding FND by sharing stories, promoting open conversations, and empowering individuals to embrace their journeys.
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Promoting Research: We actively support research efforts to deepen our understanding of FND, improve diagnostic tools, and develop more effective treatments.
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By working together towards these goals, we can improve the quality of life for individuals with FND and create a more informed and compassionate healthcare landscape. Together, we can make a lasting difference!!!