Not Defined By FND Ongoing Surveys
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Not Defined By FND is conducting multiple ongoing surveys regarding FND. Each is geared towards a different audience and has specific goals. The insights from the data obtained will be critical in helping us understand the current state of care and resource, and improve the quality of care and resources available to the FND community in the future.
Your answers are completely anonymous. No personally identifying information is requested. Note: examples of and excerpts from open-ended responses that are confirmed to not contain potentially-identifiable information may be shared!
Should you have any questions or require any assistance, please do not hesitate to contact us.
Click on the link below to take the appropriate survey or for more details about the survey. Thank you in advance for your participation!
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For FND Warriors
If you are an FND warrior, please also see the Polls section (below the survey links).
FND Diagnosis, Treatments, & Resources: The purpose of this survey is to gather data, specifically on the length of time it takes for individuals to receive a diagnosis for FND, the delivery of FND diagnoses, the availability and effectiveness of current treatments and resources, and to identify specific resources that are needed by the FND community. The target audience is anyone who has been diagnosed with FND.
For FND Warrior Supporters
​​Thoughts of FND Warrior Supporters: The main objective of this survey is to gather valuable data regarding the availability and effectiveness of current treatments and resources, as well as to pinpoint specific resources that are lacking within the FND community. The target audience for this survey includes anyone who provides support, in any capacity, to individuals diagnosed with FND, whom we refer to as 'FND warriors' in the survey.
For the General Public
​Public Knowledge of FND - The purpose of this survey to assess the general public's familiarity with functional neurological disorder (FND).
A Consensus of the Most Appropriate Name for FND Seizures: This survey aims to gather insights from a diverse range of individuals, including patients, caregivers, healthcare professionals, and researchers, to help establish a consensus on the most appropriate name for seizures related to Functional Neurological Disorder (FND).
For the Medical Community
​FND Knowledge in the Medical Community (including mental health): a survey to collect data in order to assess the medical community’s knowledge of functional neurological disorder (FND). This survey is open to individuals who work in the medical field (including mental health), including, but not limited to physicians, nurses, physical therapists, occupational therapists, speech therapists, psychiatrists, psychologists, etc.).
For Students & University Professionals
Current Status of the Understanding and Availability of Functional Neurological Disorder (FND) Information and Courses Within Secondary Education Institutions: The primary goal of this survey is to assess the current level of awareness, understanding, and availability of information and educational resources on Functional Neurological Disorders (FND) among graduate and doctoral students, faculty members, and administrative staff at secondary education institutions (universities, colleges, etc.).
Not Defined By FND Polls
These polls are designed for individuals who have been diagnosed with FND in order to gather information on specific aspects of the condition and coexisting conditions.
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Your answers are completely anonymous. No personally identifying information is requested. Note: examples of and excerpts from open-ended responses that are confirmed to not contain potentially-identifiable information may be shared!