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Make a Difference for the FND Community

Volunteer your time, skills, ideas, and experience to help create greater awareness, connection, understanding, and hope for people affected by Functional Neurological Disorder (FND).

💡 Curious about other ways to support us? Check out our Get Involved page for more opportunities beyond volunteering.

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 💡Want to learn more about our work and mission? Visit our What We’re Doing and About pages to explore our current projects, goals, and the heart behind Not Defined By FND.

Your Skills Can Help Create Change

At Not Defined By FND, we're working to end stigma, raise awareness, support the FND community, and advocate for better research, treatment, and resources for Functional Neurological Disorder (FND).


As a growing nonprofit, volunteers play an important role in helping us move that mission forward.
But we don't believe volunteering has to look like a traditional job.


You don't have to fit into a specific position or department.
 

Instead, our volunteers contribute based on their:
💡 Interests
🛠️ Skills and experience
💙 Passion for our mission
⏰ Availability
🌱 Individual strengths
 

Some volunteers may contribute regularly. Others may help with a specific project or task when they have the time.


There's no one right way to volunteer with us.

Volunteer Your Way

Life can be unpredictable—especially for people living with chronic health conditions or disabilities.


That's why we strive to make volunteering with Not Defined By FND flexible, accessible, and meaningful.

Depending on your interests and availability, you might:


🌱 Help occasionally
Pick up individual tasks when you have the time.
 

📅 Contribute regularly
Take on ongoing responsibilities that fit your schedule.
 

🎯 Help with a project
Support a specific campaign, event, resource, or initiative.
 

💡 Bring your own ideas
Have a skill or idea we haven't mentioned? We'd love to hear about it.

You don't have to know exactly where you fit before you apply. We'll explore possibilities together.

Ways You Can Make a Difference

Community Programs & Support

Help create opportunities for connection, community, and support.


Examples:

  • FND Empowerment Support Groups

  • Play & Pause Monthly Games

  • Connect & Inspire Activities

  • Community activities

  • Future community programs


Good fit for: People who enjoy connecting with others, facilitating activities, creating welcoming spaces, or supporting community programs.

Communications & Content

Help us share information and tell the story of FND.


Examples:

  • Social media

  • Newsletters

  • Blog content

  • FND Warrior Stories

  • Educational campaigns

  • Awareness initiatives

  • Volunteer recruitment content


Good fit for: Writers, editors, social media enthusiasts, designers, storytellers, and creative thinkers.

Community Inquiries & Support

Help people connect with Not Defined By FND.


Examples:

  • Responding to community inquiries

  • Website messages

  • Support inbox assistance

  • Helping people find appropriate resources


Good fit for: Compassionate communicators who are comfortable responding thoughtfully and professionally.

Finance & Development

Help support the long-term growth and sustainability of our nonprofit.

 

Examples:

  • Fundraising support

  • Grant research

  • Donation-related projects

  • Partnerships

  • Financial organization

  • Impact tracking


Good fit for: People interested in nonprofit development, fundraising, organization, research, or business/community partnerships.

Resources & Research

Help us develop and maintain reliable educational resources about FND.


Examples:

  • FND research

  • FND Libraries

  • FND Detective Series

  • Surveys

  • Community insights

  • Educational resources

  • Organizing research information


Good fit for: Researchers, students, writers, detail-oriented people, healthcare/research professionals, and curious learners.

volunteer support

Help us create a positive experience for the people who volunteer with us.


Examples:

  • Volunteer recruitment

  • Onboarding

  • Volunteer communication

  • Volunteer resources

  • Recognition and appreciation

  • Team support

  • Organizational volunteer projects


Good fit for: Organized, people-oriented volunteers who enjoy helping others succeed.

Website & Digital Systems

Help keep our digital tools and online resources organized and accessible.


Examples:

  • Website updates

  • Website organization

  • Google Drive organization

  • ClickUp organization

  • Digital systems

  • SOP development

  • Workflow improvements


Good fit for: Tech-savvy, organized, detail-oriented, or systems-minded volunteers.

Special Projects & Initiatives

Help bring larger projects and new ideas to life.


Examples:

  • FND In Focus Video Competition

  • Awareness Events

  • Special awareness campaigns

  • New programs

  • One-time projects

  • Seasonal initiatives


Good fit for: People who enjoy variety, creativity, project work, and trying something new.

Not Sure Where You Fit?

That's okay!


You don't have to choose a single category—and you don't need to know exactly what you'd like to do before applying.


Maybe you love:


research + writing
 

or
 

Canva + social media
 

or


community programs + event planning
 

or maybe you simply want to help wherever you're needed.


Tell us what interests you, what you're good at, and what you'd enjoy learning.
 

We'll explore opportunities together.

Ways to help

What Can Volunteering Look Like?

A Few Hours a Month

You might contribute a couple of hours when your schedule allows.

Project-Based

Help with a specific project, event, campaign, or resource.

Ongoing

Take on recurring tasks that fit your interests and availability.

Something Else

Have a skill we haven't listed?

 

Tell us about it!

Who Can Volunteer?

​You don't need to have a perfect résumé or years of experience.


We're interested in people who are:

  • Compassionate

  • Reliable

  • Respectful

  • Curious and willing to learn

  • Comfortable working remotely

  • Able to communicate when they need help

  • Interested in supporting our mission


Depending on the opportunity, specific skills or experience may be helpful—but you don't have to be an FND expert to volunteer with us.

​

People with lived experience of FND, caregivers, healthcare professionals, researchers, students, advocates, creatives, and community members are all welcome to explore opportunities with us.

Volunteer From Wherever You Are

Not Defined By FND is mostly a remote volunteer organization.


Our volunteers may contribute from different cities, states, and countries.


Most volunteer work is completed online using tools such as:

  • Google Workspace

  • ClickUp

  • Canva

  • Zoom

  • Other digital tools depending on the project


You don't have to live near us to make a difference.

Image by Ioann-Mark Kuznietsov

We Want You to Feel Supported

When you volunteer with us, you'll receive:

 

  • Resources & Guidance: Clear instructions, guides, and resources to help you understand your work.

  • Organization: Tasks and projects are coordinated through our volunteer systems. 

  • Communication: A way to ask questions and connect with the organization. 

  • Flexibility: We recognize that availability can change. 

  • Appreciation: Your time and contributions matter to us.

How to Become a Volunteer

  1. Apply – Express your interest through Idealist. If the opportunity appears to be a potential fit, we'll invite you to complete our full volunteer application. Apply here or with the link in the specific opportunity area you're interested in.

  2. Connect – We'll review your application and reach out if we think there may be a good opportunity to explore.

  3. Talk With Us – We'll have a conversation to learn more about you and discuss potential ways to contribute.

  4. Get Started – Once we're a good fit, we'll complete onboarding and help you get connected with your first opportunities.

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