Help Us Choose the Best Days & Times for our FND Support Groups 💛
- Not Defined By FND
- 5 minutes ago
- 2 min read
At Not Defined By FND, our FND Empowerment Circles exist for one reason: you.
Living with Functional Neurological Disorder (FND) often means navigating fluctuating symptoms, fatigue, brain fog, appointments, work schedules, supporter responsibilities, and changing energy levels. What works one season may not work the next.
That’s why we intentionally check in with our community from time to time to make sure our support group days and times still work for the greatest number of people.
Our Scheduling Survey Is Always Open — But This Is Our Annual Review Period
Our support group timing survey is available year-round so that you can share feedback anytime.
However, each year around this time, we intentionally promote it and conduct a formal review of responses to ensure our current schedule remains the best fit for our community.
We believe accessibility should never be assumed — it should be evaluated regularly.
Why Your Input Matters
We currently host two monthly Zoom support groups — one morning and one evening option — to increase accessibility.
But accessibility isn’t one-size-fits-all.
Your availability may depend on:
Symptom patterns
Medication timing
Energy fluctuations
Work or school schedules
Time zone
Caregiving responsibilities
Flare cycles
Even if you’ve never attended, your input is important.
Sometimes the only barrier is timing — and that’s something we can adjust.
Take Our Short Survey (1-2 Minutes)
We’ve created a very short survey to gather feedback about:
Preferred days of the week
Preferred times of day
Time zone considerations
It should take just a couple of minutes to complete.
We will review all responses and announce the confirmed support group days and times on May 1st — whether changes are made or not — so everyone has clarity moving forward.
Promoting the survey now gives ample time for community members to share their input before that review date.
A Gentle Reminder 💛
You do not have to currently attend our support groups to give feedback.
Maybe you’ve wanted to attend but the timing hasn’t worked.
Maybe your availability has changed.
Maybe mornings are better now than evenings (or vice versa).
Your voice matters — whether you’ve joined before or not.
What Happens After May 1st?
After reviewing responses, we will:
Evaluate patterns and time zone distribution
Consider accessibility impacts
Determine whether adjustments are needed
Publicly confirm the ongoing schedule
If changes are made, they will be announced clearly and in advance to allow for planning.
If no changes are needed, we will still confirm that the current schedule remains in place.
Our goal is simple: To make sure as many people as possible have access to safe, supportive connection.
Thank You for Helping Us Serve You Better
Not Defined By FND was created because too many people were dismissed and left without support.
We never want our scheduling to become a barrier to connection.
Thank you for helping us ensure our support groups remain accessible, intentional, and community-informed!
💛 Take the survey here: https://forms.gle/SdNQ1ndnHo3RADCk8
💛 Learn more about the FND Empowerment Circle Support Groups here.
With gratitude,
The Not Defined By FND Team
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